- The following Operating Principles and Technical Standards have been developed by the CRE in Patient Safety in collaboration with the Australian Commission on Safety and Quality in Health Care and the National eHealth Transition Authority (NeHTA) and is of relevance to people interested in understanding how to develop or maintain a clinical registry.
- A guide for Institutional Ethics Committees has been developed by the CRE in Patient Safety in collaboration with the Australian Commission on Safety and Quality in Health Care principally for use by administrators and Human Research Ethics Committees to provide guidance in understanding the purpose and function of clinical registries. It considers matters to be considered by Ethics Committee when a request for a registry is put before them.
- The Registry of Registries provides examples and attributes of Australian clinical registries including coverage, case ascertainment, information output, governance, funding and data quality processes.
- The following presentation given by Professor Allan Collins, Director of the US Renal Data System to an audience at Monash University in 2007 provides valuable advice on how to run a successful registry. " How to run a successful registry: Lessons from the USDRS"
- Funding for clinical quality registries - the Australian Cardiac Registry experience.
Reports and Publications
